Post Covid-19 Rehab

I just wanted to do a quick update before I forget about the week that I just made it through. Bobbi Jo is standing over my laptop looking at me. I think she misses cooking doggie treats. Or she may be saying, “Mom you were supposed to brush me today and you haven’t yet.” lol

In my last post I told y’all I had an appointment with my PCP. Well, he found a COVID-19 Rehab program that was being offered and asked if I wanted to give it a try. I said absolutely. I was excited that they were offering something in this area to help COVID-19 Long-haulers. I was even more excited that there was someone out there besides my doctor recognizing that Post COVID-19 Syndrome is an actual thing. I guess I am used to being treated like a crazy person who is making it all up by Cigna short-term disability.  My first appointment was last Tuesday. Then I had appointments Wednesday and Friday. This is tough and is tiring me out. My physical therapist understands there is no one size fits all with Post COVID-19 Syndrome. He also understands the fatigue and severe exhaustion that comes with it.  But that does not mean he is not going to push me a little to try to get me to that next level. My only issue is I end up sleeping the day away after I am done with my appointment.

Before COVID-19 I worked 10-hour shifts. I did not start work until 1:30pm so every morning I would get up, make a smoothie, take the dogs for a walk over at the lake, come home, do housework, yardwork, gardening, and make lunch and dinner so all we had to do was heat it up. I would do a Cookin’ with Bobbi Jo video a couple times a week. Then I would take a shower and get ready for work.

Now, I am lucky to accomplish a shower and a 10-minute walk in the same day. I do not take a shower before going to physical therapy. If I do, I will have no energy left for the therapy. I try to save the shower for the end of the day that way I can go straight to bed afterwards. Sometimes I skip the shower. I told my therapist I still cannot smell things unless they are right up to my nose so if I stink just let me know and I will spray down with Febreeze. He laughed but I am serious. Being a COVID-19 long-hauler is exhausting. For example, a couple days last week I felt like I may be getting better. I had a little more energy. Just as I get my hopes up, I feel like I take 10 steps back. This weekend has been tough. My cough is back even with the inhaler, migraines, dizziness never left, joint pains, and I have been extremely exhausted. I did manage to bake some chicken and rice for lunch today but while it was baking I took a nap.

I think I did too much on the day I had more energy. I have my PCP telling me to rest as much as possible, my pulmonologist saying to push myself more, and a physical therapist trying to help me find the middle ground. The fact is, if I push myself then I end up paying for it for a few days. That is why I have been incapacitated this weekend. I really do not think anyone gets this Post COVID-19 Syndrome until they go through it. Everyone thinks they know what is best. I take tons of supplements, but I was taking a lot before I ever got COVID-19. I took high doses of Vitamin D &Vitamin C. Yes, I take Zinc, and the list goes on and on.  I have talked to people in a long-haulers support group that were extremely healthy, took tons of supplements, were vegans, marathon runners, and are still going through the same things that my overweight self is going through. No one is exempt from this.  

Tomorrow morning, I will get up early and get Steve to drive me over to therapy. I will push myself through it and then will most likely take a long nap afterwards. I am not doing a lot of exercising in therapy. I made it 2 minutes on a stationary bike and that was an accomplishment. Before COVID-19 I could go 45 minutes on the stationary bike with no issues. I stepped on and off 1 step 15 times and felt like I was going to pass out. I am not being dramatic. That is just how weak I am now. I can do activities longer if I am sitting down. If I am standing I run out of energy quickly. I know there are a lot of people out there a lot worse off than I. I try not to complain. But I do want to document my journey through this, and it helps having all these symptoms written down so I can go back and make a timeline when a new healthcare provider has a question. I also hope it helps other people dealing with the same things to know they aren’t alone in this.  I do pray for all people dealing with this horrible virus.

Tuesday, I have an appointment with my pulmonologist to go over my home sleep study results. I have physical therapy Monday, Wednesday and possibly Thursday but I have a difficult time when it is 2 days in a row. I hope everyone has a very Merry Christmas! Keep me in your prayers as I continue to work my way through these physical challenges.  Good night.

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